000			02999cam a2200313 i 4500
001			zmeld4 b9807289
008			180614s2019 mau b 001 0 eng
010			_a 2018027592
020			_a9780262039567 _q(Cloth)
020			_a0262039567 _q(Cloth)
035			_a(OCoLC)1041562266
035			_a(coutts)cts22587134
040			_aDLC _beng _erda _cDLC _dOCLCO _dBDX _dYDX _dOCLCF _dYDX _dCIJ _dL2U _dYUS _dCaONFJC _dMiTN
042			_apcc
050		4	_aTP248.2 _bE887 2019
100	1		_aEstreich, George,
245	1	0	_aFables and futures : _bbiotechnology, disability, and the stories we tell ourselves / _cGeorge Estreich.
264		1	_aCambridge, Massachusetts : _bThe MIT Press, _c[2019]
300			_axviii, 219 pages ; _c24 cm.
336			_atext _btxt _2rdacontent.
337			_aunmediated _bn _2rdamedia.
338			_avolume _bnc _2rdacarrier.
504			_aIncludes bibliographical references and index.
505	0		_aVirtual children -- The germline -- At the fair -- Human interests -- The fine print -- New Orleans -- Reading Synthia -- Dismissive narratives -- Model worlds -- Finding a place.
520			_aFrom next-generation prenatal tests, to virtual children, to the genome-editing tool CRISPR-Cas9, new biotechnologies grant us unprecedented power to predict and shape future people. That power implies a question about belonging: which people, which variations, will we welcome? How will we square new biotech advances with the real but fragile gains for people with disabilities-especially when their voices are all but absent from the conversation? 0This book explores that conversation, the troubled territory where biotechnology and disability meet. In it, George Estreich-an award-winning poet and memoirist, and the father of a young woman with Down syndrome-delves into popular representations of cutting-edge biotech: websites advertising next-generation prenatal tests, feature articles on "three-parent IVF," a scientist's memoir of constructing a semisynthetic cell, and more. As Estreich shows, each new application of biotechnology is accompanied by a persuasive story, one that minimizes downsides and promises enormous benefits. In this story, people with disabilities are both invisible and essential: a key promise of new technologies is that disability will be repaired or prevented. 0In chapters that blend personal narrative and scholarship, Estreich restores disability to our narratives of technology. He also considers broader themes: the place of people with disabilities in a world built for the able; the echoes of eugenic history in the genomic present; and the equation of intellect and human value. Examining the stories we tell ourselves, the fables already creating our futures, Estreich argues that, given biotech that can select and shape who we are, we need to imagine, as broadly as possible, what it means to belong.
650		0	_aBiotechnology.
650		0	_aHuman genetics.
650		0	_aParents of children with disabilities.
999			_c237069 _d237069