Surgically shaping children : technology, ethics, and the pursuit of normality /
edited by Erik Parens.
- Baltimore, Md. : Johns Hopkins University Press, 2006.
- xxx, 274 p. : ill. ; 24 cm.
Includes bibliographical references and index.
Twisted lies: my journey in an imperfect body / Sherri G. Morrris -- Do I make you uncomfortable? Reflections on using surgery to reduce the distress of others / Cassandra Aspinall -- My shoe size stayed the same: maintaining a positive sense of identity with achondroplasia and limb-lengthening surgeries / Emily Sullivan Sanford -- The seduction of the surgical fix / Lisa Abelow Hedley -- Concepts of technology and their role in moral reflection / James C. Edwards -- Emily's scars: surgical shapings, technoluxe, and bioethics / Arthur W. Frank -- Thoughts on the desire for normality / Eva Feder Kittay -- To cut or not to cut? A surgeon's perspective on surgically shaping children / Jeffrey L. Marsh -- What's special about the surgical context? / Wendy E. Mouradian -- Are we helping children? Outcome assessments in craniofacial care / Wendy E. Mouradian ... [et al.] -- Who should decide and how? / Priscilla Alderson -- The power of parents and the agency of children / Hilde Lindemann -- "In their best interests": parents' experience of atypical genitalia / Ellen K. Feder -- Toward truly informed decisions about appearance-normalizing surgeries / Paul Steven Miller -- Appearance-altering surgery, children's sense of self, and parental love / Adrienne Asch -- What to expect when you have the child you weren't expecting / Alice Domurat Dreger.
0801883059 (hardcover : alk. paper)
2005027618
Children--Surgery--Moral and ethical aspects. Abnormalities, Human--Moral and ethical aspects. Surgery, Plastic--Moral and ethical aspects. Children--Surgery--Decision making. Decision making in children. Reconstructive Surgical Procedures--ethics. Achondroplasia--surgery. Biomedical Technology--ethics. Child. Cleft Palate--surgery. Genitalia--abnormalities. Social Perception.